Links for patients with rare cancers

There is a considerable amount of information available on cancer and its treatments. If you have any questions, please do not hesitate to ask us, either by calling the telephone Helpline or, better still, dropping in.

Some useful sources of information include:

What is a rare cancer?

  • There are hundreds of different types of cancer, and research suggests that between 30% and 50% of all cancer cases could be classified as 'rarer'.
  • A cancer may be classed as 'rarer' either because it affects an unusual site in the body, or because the cancer itself is of an unusual type, or requires special treatment.

[source: Rarer Cancers Foundation]

 

Cancer Research UK

Cancer Research UK

Funds research into cancer. Provides information on cancer and its treatments.

0808 800 4040

Macmillan Cancer Support

Macmillan Cancer Support

Provides information on all aspects of cancer and its treatments including medical, practical and financial issues. Also includes online community.

0808 808 0000

Marie Curie Cancer Care

Marie Curie

Provides care to terminally ill patients in their own homes or in their hospices and offers support to their families.

0800 090 2309

Carers Trust

Carers Trust

Works with partner organisations to provide information, advice and practical support to carers.

HealthTalk

HealthTalk

Website with videos in which patients share their experiences of cancer.

Lab Tests Online

Lab Tests Online UK

A site to help you understand the clinical laboratory tests that are used in diagnosis, monitoring and treatment of cancer.

NHS Choices

NHS

Comprehensive health information service to help put you in control of your healthcare

Patient.co.uk

Patient.info

Provides evidence-based information on a wide range of medical and health topics to patients and health professionals.

 

 

Download our leaflet about living with tiredness (fatigue) Download our leaflet about living with tiredness (fatigue)

 

 

Last updated: July 17, 2019