Links for patients with brain tumours

Sometimes, unless you ask for help, people may assume you are managing on your own. We all need help now and then so don't be afraid to ask - it could make all the difference to you.

As well as the Lynda Jackson Macmillan Centre itself, there are many sources of help, some of which are listed below.

Brain & Spine Helpline

Produce patient information booklets on a range of brain and spinal conditions. Helpline staffed by neuroscience professionals.

Brain Tumour Action

Voluntary organisation providing information booklets, befriending service, support and counselling for patients and relatives. Groups throughout UK.

Brain Tumour UK

Provides information, advice and support for anyone affected by brain tumours. Aims to promote awareness and supports research into the cause of and treatments for brain tumours.

Headway - the Brain Injury Association

Provides support, guidance, information and social outlets for head injured patients, families and carers. Contact for listings of regional groups. General information.

Samantha Dickson Brain Tumour Trust

Provides help and support to patients diagnosed with a brain tumour as well as their families and carers. Funds childhood and adult brain tumour research in the UK.

Speakability

Information service. National network of support groups for people with aphasia (difficulty in finding the right words and possible difficulty in reading, writing and understanding).

 

 

 

 

Last updated: May 10, 2012

For more information about side-effects and other issues relating to your treatment, please have a look at our Helpful Hints series of publications.

If you have any other questions, please don't hesitate to contact the LJMC on 01923 844014.

 

 

Helpful Hints & Contacts for Patients with a Brain Tumour

 

Further information about brain tumours and their treatments may be found on the IPS:

Information Prescription Service