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Links for patients with brain tumours

Sometimes, unless you ask for help, people may assume you are managing on your own. We all need help now and then so don't be afraid to ask - it could make all the difference to you.

As well as the Lynda Jackson Macmillan Centre itself, there are many sources of help, some of which are listed below.

Brain & Spine Helpline

Produce patient information booklets on a range of brain and spinal conditions. Helpline staffed by neuroscience professionals.

Brain Tumour Action

Voluntary organisation providing information booklets, befriending service, support and counselling for patients and relatives. Based in Scotland but hoping to extend UK wide. Groups now in Bristol and Newcastle.

Brain Tumour UK

Provides information, advice and support for anyone affected by brain tumours. Aims to promote awareness and supports research into the cause of and treatments for brain tumours.

Headway - the Brain Injury Association

Provides support, guidance, information and social outlets for head-injured patients, families and carers.

Samantha Dickson Brain Tumour Trust

Provides help and support to patients diagnosed with a brain tumour as well as their families and carers. Funds childhood and adult brain tumour research in the UK.

Speakability

Information service. National network of support groups for people with communication difficulties.

 

Last updated: 26 February, 2009